You are our Little Perfection

Singing In The Shower!!!

A few weeks ago, we began to reach out and put a video on YouTube for Ariana; because we did not own the music they took it down. On Tuesday 17^th September, as I was in the shower, the words and tune to a song came to mind. On the video, only a few lines were sung to backing music so Hana’ narration could be heard.

 

Here are the lyrics to: “You are Our Little Perfection”

“Ariana, through you, He showed us perfection,

Through you, He taught us compassion,

He never told us, only that we’d love you,

A precious gift that is given, to only a few,

Through you; you are…our little perfection. “

“You are our little perfection,

You are our love and compassion,

You are our light and direction,

You are our hope and inspiration,

Through you; you are…our little perfection.”
 

Happy Little Girl Slowly Fading

Ariana is our little perfection; perfecting the way we think, act, love and live our lives. She was born without eyes, intellectually impaired, and later diagnosed with autism. Now she also has life threatening seizures that need immediate emergency interventions to save her life. The frightening reality is that we never know when or where another long seizure will happen. We have to be constantly alert and vigilant in our watchful care. As we continue to experiment with another new medication this week, due to night time probable seizure type activity, again with its own host of side effects that require monitoring with blood levels and blood pressure testing, we can only watch as her appetite becomes supressed, her temperament change and our happy little girl slowly fade.  Money raised will enable us to get better quality medical and natural health care, physio and occupational therapy, equipment, and so forth, ensuring her time with us is long, and joyful.
 

Thank You

We are a very private, we never ask and keep everything to ourselves and the Lacevault was to be released at a later date, but Ariana’s health necessitated that we reach out now. Yes, we are blessed with Viliami’s invention; we also have absolutely wonderful family; friends and even strangers who are buying and sharing to help us reach the 10,000 order mark. Tash did a presentation to 120 work mates; Mike offered thousands of dollars, some have bought 1, 5, 10, 15 and even more. We’ve also had many approach us about donations. While we don’t accept them, we know children in the community who would benefit from a LaceVault. If you would rather donate; purchase a Lacevault, nominate “William Rose” as your referring friend and we will donate it to Ariana’s school, William Rose Public, based in Seven Hills, NSW.  Her school caters for children who have multiple disabilities.
 

 Doctors Giving Up

Recently someone said something that troubled me and maybe some are thinking; “You’re going to be rich once everyone knows about Lacevault”. We wish could share with you the vision some of the funding activities LaceVault will be able to carry out, in time we will be able to do so. Currently, our little girl’s life is our first and foremost priority. The images that are deeply engraved onto our minds is Ariana convulsing for 2 hours on her hospital bed, die, doctors giving up, revived only for seizure to again happen a few weeks later, die in my arms as her brothers and sister watched and only divine intervention brought her back. No amount of money can replace her little voice, her face, her laughter, her angelic touch, her singing and so much more in our home and family.

 

Choice

Words cannot explain the anxiety that we feel to see our little girl deteriorate in health and her happy temperament changing. This change necessitated that we reach out to friends, family and even strangers to spend just $12.99 in return you will get the evolutionary Lacevault, inspired by Isaiah who has Down syndrome and invented by Viliami, our oldest son, who just graduated from high school. That is your choice to help or to do nothing. Lacevault is an absolutely fantastic product for everyone, but it also has a greater purpose, helping Ariana.  Please get involved; Help us get the 10,000 order, then 2 Major Retail Outlets will begin to purchase 100,000 each to start, along with other stores. Again, simply spend just $12.99 for you or donate it to a child with a disability, share and like our posts, videos and stories on FB, Twitter and so on.

 

With much love and gratitude,

Fale and Leihana Mahe

 

Check out Lacevault and help:  http://lacevault.com/